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rare diseases
HEALTH & FAMILY
Don’t sweat it? HED patient Syafiq Zulkarnain literally can’t
HEALTH & FAMILY
Living with myasthenia gravis, a rare but manageable condition
HEALTH & FAMILY
Raising a child with Prader-Willi Syndrome
HEALTH & FAMILY
UK health system to offer cutting-edge gene therapy for sickle cell disease
HEALTH & FAMILY
Daring to be different: Linda Rao’s journey of self-confidence
ENTERTAINMENT
A display of talent from young Malaysian artists with rare diseases
ENTERTAINMENT
‘Never Give Up’: mom pens song for son with rare disease
EVERYDAY HEROES
Teacher and poet Nisshaa does not let dystonia define her
MALAYSIA
Ismail Sabri urges govt to plough more money into fund for rare diseases
EVERYDAY HEROES
Mum climbs Mt Kinabalu to shed light on son’s rare condition
HEALTH & FAMILY
Schoolteacher Merpati won’t let Fabry disease get him down
MALAYSIA
Govt fund to help patients with rare diseases
MALAYSIA
Think tank backs govt trust fund proposal to improve access to rare disease treatment
COMMENTS
Treatment for rare diseases: We need to do better
MALAYSIA
Review suspension of scheme for free drugs, says think tank
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